9.11.2011

we are home...

yahoo! we are home from the hospital and have more information that when we started so that's good! Christian had gained 5 oz. when they weighed him on Saturday morning and so they let us leave on Saturday. It's good to be home! Christian has a sliding hiatal hernia...his stomach pushes up through the opening in his diaphragm where his esophagus goes through. pretty painful i think, his esophagus has all sorts of blistering on the inside. ouch! and of course he has really bad reflux as well.  he's been so patient and really a trooper. i am so proud of how he is handling this.
(diagram of hernia) 
 so he'll have to have some surgery, however they want him to get back to his birth weight or a little above before they do it. we are looking forward to that in about 3-4 weeks. we'll meet with the surgeon in about two weeks hopefully. that surgery will be a 2-3 day stay when we do that. we really appreciate all the help and love and prayers being said in Christian's behalf and for our family! Thank you all so much. we will just continue pushing on and trying to get him fattened up:)

while we were at the hospital ASU played Missouri and the Missouri cheerleaders and their mascot came in and visited the kids on our floor (we were on a hemetology/oncology floor).  that was fun and nice of them to do. i didn't get any pictures with the actual cheerleaders because i was holding Christian so they could see him...but they gave us a poster and a t-shirt.



some pictures of the little man in the hospital.  he wasn't hooked up to too many things while we were there so that was nice!

he still throws up once or twice a day...but we are feeding him every two hours so i am hoping and it seems that he is keeping enough down. so that's good for now:)   we will follow up with our pediatrician and have weight checks twice a week to make sure he's gaining before we see the surgeon....and that's a good thing. i am just so excited to get him feeling better.  i know that must be so uncomfortable and all of us are really impressed with his ability to be so pleasant.

5 comments:

Mariley Johnson said...

Oh! Sweet baby in that bed. Thanks for keeping us updated. Hope he bulks up soon!

Lianne said...

Awww that sounds painful. Poor little mite. Glad you're getting the medical help you need now and it's being sorted. X

NateR said...

I'm sorry I haven't been checking blogs lately and I missed out on all this information. Prayers coming your way...that's a lot to deal with. Keep it up, Mama! Btw, I HATE reflux! It's a cruel thing for babies to have to go through (and their families).

Lacey said...

My heart hurts seeing that tiny baby in that big bed! So happy you guys are home now!! And too bad ASU's cheerleaders didn't come by with a shirt!

rachel said...

I am glad your home sweet home. Sorry, he's lookin' at surgery. Still praying and hoping for a more comfortable result for that little guy! That looks miserable! Hope he gets to the weight he needs soon AND mom's getting some sleep!